From 23rd to 25th June 2020, six focus group meetings (FGMs) on common governance principles for the reuse of health data were held by the T5.3 team as virtual workshops. The three days were organised for three different target groups/audiences:
DAY 1. Technology and Interoperability, Tuesday, 23 June 2020
DAY 2. Public Health and Research, Wednesday, 24 June 2020
DAY 3. Policy and Regulation, Thursday, 25 June 2020
A total of 101 participants from 26 European countries attended the 6 events.
FGMs helped WP5 to find replies to questions regarding policy level unmet needs for common principals and practical guidance why and how to foster innovative use of health data, big data and AI, as well as how to implement available relevant recommendations. In addition, 12 draft principles, developed by WP5 prior to the FGMs, were discussed allowing the WP team to further develop and reshape them in order to prepare their submission to the eHealth Network. Principles were also rated and prioritised by participants putting them in order of importance.
Participants could rate the preliminary principles during the registration period, and the result of the rating was introduced at the PGMs (see Figure 5).
Participants were asked to prioritise the further developed and reshaped principles at the wrap-up of the FGMs. The aggregated result of the voting is introduced in Figure 6.
Click in the following links to read the complete pitches:
Tuesday, 23 June 2020
Wednesday, 24 June 2020
- Health Literacy at the Speed of Trust | Lars Münter, Danish Committee for Health Education, Denmark
- Building-up Trust by Co-Designing Digital Tools with Health Professionals: A New Paradigm | Luís Velez Lapão, Universidade Nova de Lisboa, Portugal
- Trust is a Must | Markus Kalliola, SITRA, Finland
- InfAct: the Distributed Infrastructure on Population Health (DIPoH) | Petronille Bogaert, Sciensano, Belgium
- Rapid Set-Up of a Novel National COVID-19 Symptom Checker for Surveillance | Vera Jormanainen, Finnish Institute for Health and Welfare (THL), Finland
- Data and Public Health Research – A story of legal challenges | Claudia Habi, GÖG, Austria
- Who is the customer in data re-use? | István Csizmadia, National Healthcare Service Centre, Hungary
Thursday, 25 June 2020
- Data governance: building trust and enabling digital health | Angel Martín, MedTech Europe, Belgium
- Legal uncertainties and the re-use of health data: Clarify and harmonise to optimise | Christine J Lee, MedTech Europe, Belgium
- Data Saves Lives | Gözde Susuzlu Briggs, European Patients’ Forum, Belgium
- Interoperable digital health eco-system as pre-requisite for big data and AI | Isabella Weber, Ministry of Social Affairs, Health, Care and Consumer Protection, Austria
- Cybersecurity: It is a shared responsibility | Martha de Cunha Maluf Burgman, MedTech Europe, Belgium
- Towards a European Trust Architecture Re-use enablers and broad consent | Stephan Schug, EHTEL, Belgium
- From Big Data to Smart Health: Putting Data to work for the public’s health | Cátia Sousa Pinto, SPMS, Portugal
- Health Data Hub: Overview, strategy and lessons learned | Louisa Stuwe, Health Data Hub, France